Fighter Mom Starts Non-Profit

Andrew's Buddies Corporation (also known as "FightSMA") was created to accelerate the search for a treatment and cure for spinal muscular atrophy (SMA), the number-one inherited cause of infant death. SMA is a cruel disease, leaving many of its victims unable to crawl, walk, and even breathe or swallow on their own.  FightSMA’s objective is to raise awareness and funding for SMA research.

FightSMA was created in 1991 by Joe and Martha Slay, after they received the diagnosis of their son, Andrew.  Beginning “around the kitchen table,” FightSMA now has 19 chapters across the United States and Canada.

FightSMA hosts its annual gala, SMAsquerade, to raise funds for research and awareness.  This year’s SMAsquerade, “Make Tracks!” was held at the Science Museum of Virginia, and raised over $150,000.  Some of the highlighted items to purchase at the auction were six box seats to the Kentucky Derby, a Duck Hunting adventure in Arkansas, and an 8-day whale-watching expedition in Baja California, accompanied by a senior editor and senior photographer from National Geographic magazine.

In 2005, FightSMA launched the Fighter Mom™ program.  This model program was designed to help mothers (and other caregivers) whose children face ANY disease, health or behavioral problem.  It gives these special and courageous mothers the tools they need to proactively combat their children’s challenges. 

In recent news, FightSMA has joined together with Families of SMA and the SMA Foundation to create the SMA Treatment Acceleration Act, which has now been introduced in both the U.S. House of Representatives (H.R. 3334) and U.S. Senate (S.2042).  For more information on the bill, or to contact your Member of Congress, please e-mail FightSMA.

And while you're at today, don't forget to give your kids, be they two- or four-legged, a great big hug!

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Accompanied by a senior editor and senior photographer from National Geographic magazine.

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